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Treatments and Cures - Live Page

PLEASE NOTE: AUTHENTICITY AND CORRECTNESS OF INFORMATION ON THIS WEBSITE, IS NOT GUARANTEED. SOURCE LINKS ARE PROVIDED. INTENTION IS TO HELP AND GUIDE, AND NOT TO MISLEAD. PLEASE RAISE CONCERNS OVER EMAIL (beatingdmd@gmail.com)

A regularly updated page, with the details about all options available (that I know of) to manage, treat, cure DMD.

Select below categories to see available corresponding options.

Viltepso

Type:

Exon Skipping

Source:

Allopathy

Availability:

Available

Cost / year:

$ 25000 / KG / year

Hides exon 53, causing the rest of exons bind together. This allows the body to form a shortened version of the dystrophin protein. Weekly IV dosage is required to maintain the dystrophin expression. Although dystrophin expression increases and is established but benefits with the symptoms are not fully established yet.

Only for exon-53 amenable patients.

July 17, 2023 at 2:07:27 PM

LevoCarnitine

Type:

Oral Medicine

Source:

Allopathy

Availability:

Available OTC

Cost / year:

Not Decided Yet

DMD patients usually lack carnitine, which is important for muscle health. More details apart from the source: https://longevity.technology/lifestyle/l-carnitine-benefits-side-effects-uses-dosage-and-research/amp/

July 17, 2023 at 11:59:36 AM

Vamorolone

Type:

Oral Medicine

Source:

Allopathy

Availability:

full FDA approval awaited, Oct 2023

Cost / year:

Expected $ 100 k per year

Synthetic Corticosteroid. Reduces muscle inflammation and increases muscle strength. Alternative to standard corticosteroids which have a lot of side effects.

All benefits of corticosteroids, with very less side effects.

July 18, 2023 at 12:24:29 PM

SRP-9001

Type:

Gene Therapy

Source:

Allopathy

Availability:

FDA approved for 4-5 y.o. Extended approval awaited

Cost / year:

$ 3.2 Million

Using AAV vector virus, small functional dystrophin is injected in the body

Now known as Elvidys

July 17, 2023 at 2:06:47 PM

Vitamin-D

Type:

Oral Medicine

Source:

Allopathy

Availability:

Available OTC

Cost / year:

$ 5 per month

Bone health is important, and Vitamin D helps with that. Especially when corticosteroids are taken, maintaining bone density is important.

Safe. Will only help.

July 18, 2023 at 12:35:24 PM

Prednisone

Type:

Oral Medicine

Source:

Allopathy

Availability:

Available OTC

Cost / year:

$ 10 per month

Corticosteroid. Reduces muscle inflammation and increases muscle strength

Although the standard of care for DMD for now, but has a lot of side effects.

July 18, 2023 at 12:22:36 PM

Neurofol Z

Type:

Oral Medicine

Source:

Allopathy

Availability:

Available OTC

Cost / year:

$ 2 per month

Vitamin and mineral supplement for nerves and muscles

July 17, 2023 at 2:06:11 PM

Givinostat

Type:

Medicine

Source:

Allopathy

Availability:

FDA approval awaited Dec-23

Cost / year:

Not Decided Yet

Inhibits inflammatory HDACs, thus helping in muscle health and reducing muscle damage

July 17, 2023 at 2:07:07 PM

Deflacort

Type:

Oral Medicine

Source:

Allopathy

Availability:

Available OTC

Cost / year:

$ 10 per month

Corticosteroid. Reduces muscle inflammation and increases muscle strength

Although the standard of care for DMD for now, but has a lot of side effects. LESS SIDE EFFECTS THAN PREDNISON.

July 18, 2023 at 12:23:54 PM

DesiAushadhi

Type:

Oral Medicine

Source:

Ayurveda

Availability:

Available

Cost / year:

$ 200

According to Guru Kumar Swami ji, this ayurvedic mixture cures DMD. I hope it does. See the source-video for more details

July 17, 2023 at 12:00:16 PM

BalashwagandhiOil

Type:

Massage Oil

Source:

Ayurveda

Availability:

Available

Cost / year:

$ 2 per month

Reduces muscle inflammation and strengthens muscles

July 17, 2023 at 11:59:50 AM

General Diet

Type:

Diet

Source:

various articles, google, dietician consultations

DietAndNutrition

Availability:

Available

Cost / year:

NIL

Diet plays an important role in any health concern. Watermelons, blueberries, egg white, beans, flax seeds, pumpkin seeds, soyabean, seasonal fruits, omega-3 rich foods etc help a lot with muscle health and help slow the progression of DMD

Avoid packaged, processed and fast food. Prefer fruits, vegetables which are rich in fibre, protein and low in fat and cholestrol.

July 18, 2023 at 12:44:09 PM

NeuRefix

Type:

Oral Medicine

Source:

DietAndNutrition

Availability:

available

Cost / year:

$ 200 per month

immunity supplement which is showing promising results in reducing muscle inflammation, increasing muscle generation and stabilising immunity in DMD patients

shouldn’t harm, immunity supplement similar to a probiotic. worth considering as an adjuvant

August 4, 2023 at 4:54:05 PM

BlueBerries

Type:

Diet

Source:

DietAndNutrition

Availability:

Available

Cost / year:

$ 10 per kg

Reduces cholestrol and benefits heart

July 17, 2023 at 12:00:57 PM

Kali Mur

Type:

Oral Medicine

Source:

Homeopathy

Availability:

Available OTC

Cost / year:

$ 2 per month

Gut health and absorption

July 17, 2023 at 2:05:33 PM

Kali Phos

Type:

Oral Medicine

Source:

Homeopathy

Availability:

Available

Cost / year:

$ 2 per month

Muscle strength and general energy. It is widely prescribed for muscle weakness, fibrosis and general fatigue.

Homeopathy medicines are generally considered as safe. So it should only help. According to some youtube videos, CPK comes down more quickly with few homeopathy remedies like this one.

July 17, 2023 at 11:59:08 AM

Plumbum Metallicum

Type:

Oral Medicine

Source:

Homeopathy

Availability:

Available OTC

Cost / year:

$ 2 per month

Prevents muscle weakness, boosts muscle regeneration and helps with muscles aches and cramps. Widely prescribed medicine for muscle diseases.

Homeopathy medicines are generally considered as safe. So it should only help. According to some youtube videos, CPK comes down more quickly with few homeopathy remedies like this one.

July 17, 2023 at 2:06:28 PM

Sunlight

Type:

Activity

Source:

LifeStyle

Availability:

Available

Cost / year:

NIL

Expose yourself to atleast 10 minutes of sunlight daily. It helps fight infections, regulates Vitamin D levels. Daily exposure of few minutes is far better than occasional prolonged exposure.

Safe. Will only help. One of the known ancient healing techniques.

July 18, 2023 at 12:36:05 PM

Active

Type:

Activity

Source:

LifeStyle

Availability:

Available

Cost / year:

NIL

Active lifestyle will keep muscles healthy and joints flexible.

July 17, 2023 at 12:01:08 PM

Pray

Type:

Pray

Source:

LifeStyle

Availability:

Available

Cost / year:

NIL

If you are a believer, then with full faith, pray to god from your heart. And have a belief that god can heal anything. In almost every sacred text it is mentioned that everything happens for a reason and god knows best. And it’s never too late to ask for forgiveness.

Will only help.

July 18, 2023 at 12:32:23 PM

Swimming

Type:

Activity

Source:

YogaAndPhysio

Availability:

Available

Cost / year:

NIL

Enhances muscle strength and stamina. Helps in relaxing the muscles.

July 17, 2023 at 2:04:34 PM

KapalBhaati

Type:

Activity

Source:

YogaAndPhysio

Availability:

Available

Cost / year:

NIL

Improves metabolism and blood circulation

July 17, 2023 at 12:01:13 PM

Anulom Vilom

Type:

Activity

Source:

YogaAndPhysio

Availability:

Available

Cost / year:

NIL

Improvements to brain, respiratory, and cardiovascular health. Also helps with sinus infections, cold and cough. Regular practice avoids such infections.

A safe to do yoga, will only help.

July 17, 2023 at 2:10:39 PM

This page is updated regularly.

Please let us know if you know of any other treatment option for DMD, which looks promising to you. OR If you want to opine on any of the listed items here.

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